Sunday, March 25, 2012
Friday, March 23, 2012
And cute little Chloe is doing so much better! She never has to work hard to breath, and her cough improves every day. She spends all her waking minutes looking around at her surroundings with wide eyes, like she knows she's in a new place. I love putting clothes on her and holding her without wires and kissing those soft cheeks without oxygen tubes and yucky tape in the way. Now I just need to fatten her up. She still wasn't up to her birth weight when we left the hospital.
Sunday, March 18, 2012
I love those big, bright eyes! She reminds me of baby Tyler. Dave's not coming down for a couple of days because there's a stomach bug threatening the homefront. I hope it resolves quickly so we can go home to a healthy house!
Saturday, March 17, 2012
Very cool design!
This was the first time they were able to hold Chloe in almost 2 weeks, or 2/3 or her life. They say she's changed a lot. She's doing better every day, and the respiratory therapists have started lowering her oxygen % and flow.
Brennan's bowls were a group effort.
That's a heavy ball for him!
It was pouring down rain when we left, and we didn't park too close (you know how campus parking is!), so I left the boys there while I ran to get the car. I had an umbrella, but my pants got soaking wet. What an adventure! Dave and Chloe had a nice nap together the whole time we were gone.
Friday, March 16, 2012
The past few days really have been a roller coaster. Overall she is doing better, meaning the RSV is pretty much gone. No more fevers, no more nasal congestion. But the big problem now is mucous plugging in her lungs. They are thick and hard for her to clear. We are still doing the nebulizer treatments and high flow oxygen to help her expand her lungs, and they have a little vibrating tool to help loosen up the gunk. Her right lower lung is still the most congested, but the general consensus is that she has better air movement overall. There are occasional episodes that scare me to death when the mucous plugs dislodge and cut off a larger airway. Then she goes into respiratory distress until she's able to clear it. The worst was Wednesday night. Her O2 sats dropped really low and her face turned blue. The nurses all rushed in and gave her lots of oxygen and almost had to bag her. The doctor wasn't surprised and said that could continue to happen until she gets rid of all the mucous. She is one tough cookie, and she's been coughing up some phlegm. What a slow, hard process.
Wednesday, March 14, 2012
This morning the doctor was concerned that her respiratory rate was too fast and shallow, indicating that she wasn't expanding the lower sections of her lungs. So he decided to put her on high flow air. The amount of oxygen is the same, but it's mixed with room air at a higher flow to help open her lungs. I think it has helped, and her lungs sound better tonight than they have all week.
Then she had another episode of respiratory distress tonight that scared us. Her heart rate has been hovering around 180, which is already pretty fast. But after an albuterol treamment (which raises her heart rate) it shot up to 200. In case you're wondering, that's FAST! Her respiratory rate also went up to 100. Can you imagine breathing that fast? That's enough to wear anyone out. This picture was taken this morning when things were going pretty good. Apparently the oxygen tube that attaches to the wall had gotten loose, so the air pressure was way too low. The respiratory therapist (who usually just works with adults) didn't know how to use this machine (which is usually just used in the NICU); so she lowered the air flow and gave her a regular nubilizer treatment. She must have bumped the oxygen tube in the process. Luckily Dave figured it out and fixed it. I'm sure glad it happened while he was still here! She's sleeping calmly now, so I really should get some sleep while I can.
Tuesday, March 13, 2012
Sunday, March 11, 2012
Levi wasn't shy this time. He ran right up to me to be held. Then the sweet nurse snuck them all in to see Chloe, so that was fun for them. They were happy to see she's still a little baby, because they feel like they're missing the whole newborn stage.We used to go to this park a lot when Spencer and Tyler were little, and they kept saying, "I remember this!"
They brought down scooters, roller blades and hockey stuff (there's a really nice, new outdoor roller rink there). I had to go back to feed Chloe, but they kept playing a couple more hours. Then Dave stayed with Chloe while I took the boys to Sears for new shoes.
After being stuck in a windowless room for a week, I was happy to take some good outdoor lighting pictures of my cute boys.
Kristen and Nathan brought the boys down to visit after church today. It was a colder day, so we couldn't spend as much time outside. But they brought me a red velvet cake, and we had fun eating it in the cafeteria. Kristen offered to have the boys stay at her house for a little while, and they were SO excited about having a slumber party with their cousins tonight!
Thursday, March 8, 2012
The boys really wanted to see Chloe, but kids under 12 aren't allowed in the peds unit. At the end of our visit they looked through the pediatric door window while Dave held her up for them to see. They're doing really well, but it's been hard on them too. When they first got here, they all ran up and gave me big hugs. Except Levi. He took one look at me, turned around and walked away. But he warmed up quickly and wanted me to carry him to the park. And for the first time in months, I was able to do it. He was a stinker during dinner (whined about which piece of pizza he got), but I didn't even care. I miss that stinker.
Wednesday, March 7, 2012
Apparently her history was classic for R.S.V.: older siblings with colds, (worse for younger kids), mild upper respiratory symptoms for a few days, getting worse and peaking at day 5. There are 4 other baby girls in the pediatric unit right now, and they all have R.S.V.
We have had such an outpouring of love, prayers and support from family and friends. Kristen and my parents have watched our kids, and Dave's work cancelled all his appointments for 2 days and told him to take as much time off as he needed. He's been able to spend a lot of time with us here at the hospital. Friends have driven our kids to/from school, and we've gotten lots of calls, emails & texts from those concerned.
Chloe has been such a trooper. She continues to nurse & sleep well, and she has learned to accept all the wires. They took the oxygen off this afternoon to see how she'd do on room air, and it went well for a few hours. But her oxygen sats started dropping for the past hour or so, and they've had to put her back on it. They said she needs to be off the oxygen for 24 hours before we can go home, so I really hope she can get off it soon.